Links - Specific Disability
www.afasic.org.uk: Represents children and young adults with communication impairments and offers a range of services including information helpline.
www.apparelysed.com: Spinal cord injury peer support website.
British Deaf Association
http://www.bda.org.uk/: The BDA is the largest Deaf organisation in the UK that is run by Deaf people. We represent the Sign Language community, which is united by shared experiences, history and, most importantly, by British Sign Language (BSL).
British Epilepsy Association
http://www.epilepsy.org.uk/: Everything you need to know about epilepsy.
http://bibic.org.uk/: We provide services to children and young people aged 6 months to 18 years, with neurological and genetic conditions including Cerebral palsy, Down's syndrome, Autism, Attention Deficit Hyperactivity Disorder, Dyslexia and Dyspraxia, as well as children with no diagnosis. We will support children in all areas of their development. In addition we provide help and support to families, enabling them to better understand their child's condition.
Brittle Bone Society
http://www.brittlebone.org/: The UK charity for Osteogenesis Imperfecta.
www.cerebralpalsy.org.uk: Supporting children, adults and their families affected by Cerebral Palsy.
Cerebral Palsy - Ask the Doctor – US site
http://www.about-cerebral-palsy.org/: About cerebral palsy and the latest treatments.
Children Living with Metabolic Diseases
http://www.climb.org.uk/: Climb is committed to fighting metabolic diseases through research, awareness and support.
Contact a Family
http://www.cafamily.org.uk/: Helps families with disabled children. Can give organisational contact details for rare and specific disabilities/syndromes.
Cystic Fibrosis Trust
http://www.cftrust.org.uk/: UK's only national charity dedicated to all aspects of Cystic Fibrosis (CF).
https://www.debra.org.uk/: The national charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
We're here to help and support you and your loved ones.
Debra - US
http://www.debra.org/ : Dystrophic Epidermolysis Bullosa Research Association of America.
http://www.diabetes.org.uk/: The leading charity working for people with diabetes.
http://www.headway.org.uk/: National Head Injury Association.
http://www.mencap.org.uk/: Mencap is the UK's leading learning disability charity working with people with a learning disability and their families and carers.
Muscular Dystrophy UK
http://www.muscular-dystrophy.org: Focuses on Muscular Dystrophy and all allied disorders.
www.scope.org.uk: We provide support, information and advice to more than a quarter of a million disabled people and their families every year. We raise awareness of the issues that matter.
www.shinecharity.org.uk: Europe’s largest organisation dedicated to supporting individuals and families as they face the challenges arising from spina bifida and hydrocephalus.
http://www.shinesurrey.org.uk/welcome.htm: Shine Surrey is here to help, advise and support anyone, young or old, who has spina bifida and/or hydrocephalus, together with their family or other carers and professionals within our area.
Spinal Injuries Association
http://www.spinal.co.uk/: The national organisation of spinal cord injured people.
Please note we do not respond to unsolicited request to add links to our website.